Polymyalgia Rheumatica, Giant Cell Arteritis, Takayasu's Arteritis

Support Groups - National

2006-01-09T13:12:00.000-08:00

Supprt Groups: We receive inquiries every week from people around the world looking for a Support Group in their area. A request this morning (01/09/06) was from Washington, D.C. NMRFoundation is currently opening Support Groups in Arizona and plans to open Support Groups across the nation. We would like to move faster!

If you are interested in Polymyalgia Rheumatica (PMR) or Giant Cell Arteritis (GCA) and would like to "get involved" in actiuvities in your city, please contact NMRFoundation:

Respond to this Blog
Telephone: 480-883-1408
E-mail: nmrf@nmrfoundation.com

Polymyalgia Rheumatica, Giant Cell Arteritis, Takayasu's Arteritis

2006-01-09T13:09:00.000-08:00

Polymyalgia Rheumatica, Giant Cell Arteritis, Takayasu's Arteritis

Exciting News!

2005-07-31T17:25:00.000-07:00

National Medical Research Foundation has been asked to join The Vasculitis Clinical Research Consortium. (VCRC)

The VCRC is an integrated group of academic medical centers dedicated to conducting clinical research in different forms of vasculitis including the care of patients with vasculitis. NMRFoundation has been invited to join as the Patient Advocacy Leaders for Giant Cell Arteritis and Polymyalgia Rheumatica.

This partnership is very exciting as we are now associated with such prestigious organizations as:

Boston University School of Medicine
Mayo Clinic College of Medicine
John Hopkins School of Medicine
Cleveland Clinic Foundation

Through the VCRC association we are positioned to bring the latest clinical information to all patients attending Support Groups and members of Awareness Committees. As a conduit for "what's new" NMRFoundation will be in a position to make patients feel more secure and connected to the center of the latest progress/information.

NMRFoundation will be the messengers for advances in human health by building far-reaching, powerful, and mutually beneficial relationships with individuals, patients, physicians and institutions.

Edward & Joan Reiter, Founders.

Grassroots Carpet

2005-06-16T09:36:00.000-07:00

The National Medical Research Foundation's Mission is to find a cure as quickly as possible for Polymyalgia Rheumatica & Giant Cell Arteritis: establishing Support Groups & companion Awareness Committees is one of the quickiest and most efficient directions for expansion.

A family has stepped forward in Florida to start establishing both groups which will be a first in that State. Which State will be next? Please call: 480-883-1408 or email nmrf@nmrfoundation.com. Or get a dialogue going by responding to this blog!

Joan and Edward Reiter, Founders

NMRFoundation is reaching communities!

2005-05-27T11:48:00.000-07:00

Opening up e-mail communications from patients, family and friends is extremely important to the foundation as it gifts suggestions, ideas and genuine support. A woman in Holland, e-mailed NMRFoundation as she couldn’t find a Support Group in the Netherlands. We have suggested that with the help of a relative or friend she seriously look into starting a group. The first sentence of her email stated that she wanted to express her “profound gratitude” that the foundation is directed toward research.

Last week we received many requests for information about Support Groups throughout the country: NMRFoundation is deeply committed to promote a base of support for the continual help and encouragement to all who have been diagnosed with PMR/GCA. Our goal is to organize Support Groups in every state with the help of patients, family/friends and the medical community.

A support group is designed as a platform for communications within a small gathering dedicated to wellness. NMRFoundation encourages a small group (4 – 5) to start. Bringing inspirational ideas and “good news” to others can be the tool for changing attitudes and stimulate a positive direction. A family member or friend should be asked to attend meetings with the patient for at times the patient is depressed, confused and in such pain that they would rather reject the whole idea. The road to health requires enthusiastic cheers and understanding from family, friends and the medical community.

Recovery happens! Believe me, I’ve been there and done that! For many months I couldn’t imagine feeling wonderful, full of hope and applause! The “birth” of the NMRFoundation pushed me into a path of determined wellness which energized my bruised body and set me on the track to fulfill a vision.

My great family understood that the road to health requires enthusiastic cheers from all the family, friends and the bunch next door. I believe everybody is born with a gift that can be fired up when the time is “ripe”! This might be the time to “start the engine of return!”

Find ways to stimulate the NMRFoundation mission: the cure, find an alternative medicine other than steroids, a diagnostic tool, and, market our web site for the Circuit City bag of goodies! These actions could be your vehicle to great health. Do you like speaking to groups – organize neighborhood awareness groups, volunteer to market newspapers, etc. We need you!

Please contact me and tell your story. I want to know what you are thinking, your ideas and suggestions. Only you can start the healing machine: talk to me!

Joan L. Reiter, Founder
National Medical Research Foundation
480-883-1408
1900W.Chandler Blvd., Suite 15215, Chandler, AZ 85224
E-mail: nmrf@nmrfoundation.com

Keywords: Polymyalgia rheumatica, giant cell arteritis, takayasu arteritis, vasculitis, temporal arteritis, vascular disease, National Medical Research Foundation, Joan Reiter, Edward Reiter